Cure Sanfilippo Foundation

We are Cure Sanfilippo Foundation and we have a clear mission: to advocate for and fund research that could give children with Sanfilippo syndrome a chance at a better life by finding a treatment or cure for the disease. And we remain passionately focused on that goal. The results and progress made so far have been largely thanks to partner-families joining our Foundation around the country and the world.

We recognize every family of a child with Sanfilippo syndrome is on their own unique journey. This difficult journey can often be a lonely and isolating one. Cure Sanfilippo Foundation is a place to join with other parents and families going through the same, and be part of changing the fate for children with Sanfilippo. We do this together, primarily through advocacy, spreading awareness, and fundraising. Cure Sanfilippo is proud of our laser-focused mission, professionalism, demonstrated results, transparency, collaboration, and information-sharing. We seek families that would like to join these efforts to better the lives of children.

We believe that working together creates exponential power and opportunity to find a treatment or cure for Sanfilippo. Voices raised together are heard more loudly. Work done together is done faster. In addition, it is empowering for a family to take a stand against this disease that currently has no treatment options. A family will see their community rally in honor of their child and their circle of awareness and influence grow. This upswell of support and action truly makes a tangible difference that is seen through development of more clinical trials and faster movement toward approved, effective, and available therapies for all children with Sanfilippo.